I travelled to Monterey, Mexico in September 2017. After friends and family fundraised and I used some of my pension lump sum to send me for pioneering HSCT treatment. I received gruelling chemotherapy treatment and my stem cells we introduced on September 24, 2017. I class this as my second birthday!
At first, I noticed some initial improvements. This included my left arm beginning to work again and I was more confident on my feet. But after just three months, I declined and began to progress again and it’s been downhill ever since I have had the treatment. I have gone from an EDSS score of 6 to 7.5 in just two years. It is a scary place to be in. I worry about the future and what it will hold for me and my family as the disease progresses.
Unfortunately, the after-care from the clinic has been non-existent. I have reached out many times for help, but I have been ignored. I have since found out that there is only a one in four chance of the treatment working for patience with secondary progressive Multiple Sclerosis. I am now in a position where I need to spend money on adapting my home to suit my ever increasing disability. I continue to try and fight against my condition getting worse.
